Modifying End-of-Life Planning to Appeal to Underserved Communities
Webinar/Online
Thursday, April 4, 2024 at 12:00pm MT - 1:00pm MT
This event has ended.
Info
Topic
1. Learn how to access research that addresses the racial & ethnic disparities that persist in serious illness & hospice care. We will address advanced care planning engagement with the intent of improving access to care, especially for those who live in underserved communities.
Additional Information
Please join us in the first of two presentations on the research findings and qualitative research conducted through online communities, from the Massachusetts Coalition for Serious Illness Care. The findings highlight end-of-life planning, advance care planning and the public's engagement in improving serious illness care. Despite efforts to promote advance care planning, rates have remained largely unchanged.
The first session focuses on the research findings, geared to palliative and hospice teams. A highlight of this session is the crucial need for healthcare providers to understand the patient's priorities and treat them with dignity and respect. Additional recommendations will be shared.
The second session offers a sample PPT presentation that makes recommendations on how to modify current messaging in a way that speaks to the key findings of the study. The sample presentation is meant as a means of communicating in a manner that is positive to the public and encourages individuals to take action. This includes action that supports conversations about medical care and decision-making, documenting health care proxies wishes, plans for care, and looking for the right doctor. This session is geared to palliative and hospice teams, and healthcare professionals who are interested empowering teams and patients to take positive action in managing serious illness and end-of-life planning.
The toolkit in the second session is copyright free. Resources will be provided at both sessions.
Speakers
Owner of Ending Well! Paient Advocacy, LLC
Althea is founder of Ending Well! Patient Advocacy, LLC, a Board Certified Patient Advocate and Professional Medical Power-of-Attorney. Her expertise and service to clients is extensive, with over 20 Years of experience advocating for the vulnerable and dying. As a long-time hospice volunteer and trained End-of Life Doula, she also assists those facing the end of their lives.
Advocacy/Empowerment for Patients and Healthcare Teams
Deb has worked on the frontlines of nursing care her entire nursing career. In 1988 she organized and led a “Patient Care Conference” for a patient who had been hospitalized for several months. Jack transferred back and forth between CCU, ICU and the cardiovascular med/surg unit that she worked on, never stabilizing enough to be discharged. Today this conference is known as a Patient-Centric, Goal Concordant conference. The patient’s goal was, “to get well enough to go home, and then take my grandson fishing”. If you are curious about Jack’s outcomes, Deb will share his outcomes at the April 4 meeting. Deb then spent the next 30+ years looking for a practice environment where she could work with a team in a similar fashion as she had with Jack! She found that team in 2017, when she entered the world of hospice nursing. She found a place where patients’ emotional and spiritual needs were recognized and their goals were an integral part of the team’s action plan. At last, she had found her calling and a place for patient-centric care. The three sessions being offered by the Phoenix chapter of HPNA, offers each of us a place to more fully engage with patients and their families. A place where we can more fully “meet our patients where they are”.